Meet This 26 Year Old Model With Rare Skin Disorder Who Is Redefining The Standards Of Beauty

In this era where people are always up to show off, it’s not easy to be suffering from a skin disorder. While most people hide themselves at their home, others embrace their imperfection. Sara the 26 years old model belongs to the second category.

She now lives in Los Angeles. Her story is very inspiring. From being conscious in the beginning to embracing your imperfection, she is an epitome of a fighter.


Sara Geurts at the early age of 10 started noticing changes in her skin. Her skin was becoming stretchy. However she never took it seriously and rather liked it as she was able to do things that other kids of her same age couldn’t.

I had one of my closest followers reach out to me and informed me of @instylemagazine latest summer photo challenge. The challenge would be to post pictures of yourself in your swimsuit, on your social media, tagging #instyledare to submit your photo. This was by all means an impromptu shoot and hope to have a more legit one on the books sooon! ❤ • • • • • • • • • • #weekend #photoshoot #instyle #instyledare #swimsuit #pool #summer #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #nowrongway #beyou #bebeautiful #blessed #inspire #embrace #beauty #imperfections #perfectlyimperfect #real #sorrynotsorry #vibes #model #wlyg #weloveyourgenes

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She was later diagnosed with Ehlers-Danlos Syndrome (EDS). EDS is a connective body tissue disorder that resists body from producing collagen. It is a rare disorder which includes loose joints, chronic muscle pain and stretchy, fragile skin. EDS affects only 1 in 5000 people.

“I think that the modeling industry is based around the vision of ‘perfection’ and by putting my ‘imperfections’ out there, it’s almost like a slap in the face to the industry: shock factor, a sense of rebellion,” Geurts said. 

“By going against what the ‘norm’ is within the industry and getting such positive feedback, it really enforces my vision of myself, the journey I am on, and just being perfectly imperfect.” says this 26 year old model

She started a project called The Love Your Lines Campaign for the people who have lack of confidence due to their body image.

“There are always going to be those who don’t entirely understand what you’re doing, or see the vision you have put forth,” Geurts said. “But the good always outweighs the bad, and the amount of Ehlers individuals who have offered their insight and support has been what keeps me going.”

BOOOKED FOR L.A. AUG 3 – 8TH!! I am sooo ecstatic to announce I have been contacted by Volition Magazine to be featured in their next Fall Issue!! "VOLITION is a Bi-Monthly, 250+ page, full-color High Fashion & Art Publication based in Los Angeles. It is our goal to create a place for the creepy kids to call home and to inspire others to follow their heart." For those that don't know, LOOK EM UPP, GIVE EM A LIKEE??& vibe out with their creative vision. I CANNOT WAIT TO BE BACKK IN L.A & hope to do some networking out there as well! Thaaank you all for your lovee and support, ill be sure to keep you all postedd! Thank you thank you & we can only go upp from here! ☝❤? • • • • • • • #week #tuesday #photoshoot #photograpy #venicebeach #losangeles #california #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #nowrongway #beyou #bebeautiful #perfectlyimperfect #blessed #inspire #beauty #embrace #happy #vibes #sorrynotsorry #real #model #wlyg #weloveyourgenes

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Her advice to people who lack confidence due to their body. Never give up. Know you always have support, and reach out to those when you need. The journey you are on is individual to you, and makes you who are. No one else walks the same journey, or bears the same stripes as you. Wear your stripes with my pride, my love, and know you have a whole herd of support.”